At ECR 2020, the European Federation of Radiographer Societies (EFRS) welcomes the involvement of the European Cancer Patient Coalition (ECPC) and the European Organisation for Research and Treatment of Cancer (EORTC), as we discuss increasing public and patient involvement (PPI) in our work.

Introduction

The EFRS has pleasure in working with the ECPC, the voice of cancer patients in Europe. With more than 400 members, the ECPC is Europe’s largest umbrella association for cancer patients, covering all 28 EU member states and many other European and non-European countries. The ECPC represents patients affected by all types of cancers, from the rarest to the most common1.

Charlotte Beardmore is Vice-President of the European Federation of Radiographer Societies (EFRS) and Director of Professional Policy for the Society and College of Radiographers, London, UK.

The vision of the EFRS is as a proactive organisation; supporting the development of the radiography profession within medical imaging, nuclear medicine and radiotherapy across Europe, in order to enable members to enhance the quality of clinical imaging and radiotherapy services for their patients. With more than 40 national radiographer societies and 65 educational institutions as members, it has the opportunity to influence practice through a large number of radiography professionals and students2. Patients are at the heart of our work, through developing strategies to promote the importance of patient and public engagement, providing frameworks to support harmonisation of education to support excellence in person-centred care, and through our work related to patient safety3. Patient and professional communication and patient-centred care, importantly, also remain at the top of the agenda of the European Society of Radiology Patient Advisory Group, and the EFRS is pleased to be a partner in this work4.

EFRS Workshop on public and patient involvement (PPI)

This workshop has been designed to offer participants the opportunity to learn from both patients and professionals, and specifically:

1. To understand the importance of public and patient involvement in education, research, and practice.

2. To explore approaches in achieving successful public and patient involvement.

The workshop is of importance to all working within clinical imaging and radiotherapy services and to members of the public, and will appeal to students, radiographers, radiologists, oncologists, educators, managers and service leaders and researchers.

The workshop will be hosted by me and Erik Briers from Hasselt, Belgium (European Cancer Patient Coalition). Erik’s opening presentation will explore ‘The patient’s perspective: considering our voice’ in relation to delivering excellent imaging and radiotherapy services, with service focused around patients’ needs. Erik will discuss what matters to patients and will consider how effective feedback can really make an impact upon how services are developed to meet patients’ needs.

The College of Radiographers: Patient Public and Practitioners Partnerships within Imaging and Radiotherapy: Guiding Principles. London 2018

Dr. Rachel Harris, from the Society and College of Radiographers, London, will discuss the development of a guiding principles strategy for patient public practitioner partnerships within imaging and radiotherapy services at a national level, for the UK, and will outline the key priorities of the national strategy published by the Society and College of Radiographers5. Dr. Harris will discuss the steps in supporting implementation of the principles at a national and local level across the UK in her presentation titled ‘Patient, public and practitioner partnerships at a national level: a UK case study’.

Dr. Helle Precht from Odense, Denmark, will then consider the importance of ‘Public and patient involvement in education and training’ and how this can be successfully achieved. This will be followed by a presentation on ‘Public and patient involvement in research’ by Anastasia Negrouk,Head of the International Policy Office of the EORTC, who will explore how the public and patients can help research trial and protocol development; how patients and researchers can work together in managing research projects and offer insight into how patients can importantly help disseminate research results at the end of a study.

The final presentation in the session, ‘The role of the EFRS in supporting public and patient engagement’, from the EFRS President, Dr. Jonathan McNulty from Dublin, will explore work at the European level in supporting engagement, showcasing activity that is helping support work, and will conclude with an overview of future EFRS plans to support partnership working.

The speakers will then be invited to contribute to a panel discussion asking ‘Are we doing enough to support public and patient involvement?’ and consider how we can work together in partnerships to continually improve the care we provide to cancer patients within imaging and radiotherapy services, through increasing public engagement in the design of our work. On behalf of the EFRS, the European Cancer Patient Coalition, and the European Organisation for Research and Treatment of Cancer, we look forward to meeting you at this important workshop today from 16:00 to 17:30 in Room Darwin (D2) on the lower level.

1 European Cancer Patient Coalition
2 European Federation of Radiographer Societies
3 Patient safety in medical imaging: A joint paper of the European Society of Radiology (ESR) and the European Federation of Radiographer Societies (EFRS) Radiography. May 2019 Volume 25, Issue 2, Pages e26–e38.
4 European Society of Radiology ESR Patient Advisory Group launches ambitious new strategy 
5 The College of Radiographers: Patient Public and Practitioners Partnerships within Imaging and Radiotherapy: Guiding Principles. London 2018.

LIVE
EFRS Workshop
, Saturday, July 18, 14:30–15:30
EFRS WS 4 Public and patient involvement (PPI)

Moderators:
Charlotte Beardmore; London/UK
Erik Briers; Hasselt/BE

  • The patient’s perspective: considering our voice
    Erik Briers; Hasselt/BE
  • Patient, public and practitioner partnerships at a national level: a UK case study
    Rachel Harris; London/UK
  • Public and patient involvement in education and training
    Helle Precht; Odense/DK
  • Public and patient involvement in research
    Anastassia Negrouk; Brussels/BE
  • The role of the EFRS in supporting public and patient engagement
    Jonathan McNulty; Dublin/IE
  • Live Q&A: Public and patient involvement: are we doing enough?